There has been a lot in the news lately concerning Strep B. I am very much an advocate for educating and share a lot of news from The Group Strep B Support website. There is a whole host of information and Jane Plumb MBE, is the founder alongside her husband, Robert. Please have a read. Their campaign to improve awareness is fantastic.
I find writing about my son, Thomas the hardest. Not because I don’t want to but because unless you’ve lived it or you live it, it’s hard to understand. And if I’m honest, I’m not sure if I’ve ever come to terms with it. Thomas was four days old in the photo and at the height of the infection.
However, I am currently sat on Thomas’ bedroom floor while he sleeps, I will try to sneak out again in five minutes, but this is where you will find me between 8.30pm and 10.00pm most evenings.
I want to share Thomas’ and our story because as a Mum, we read all the books, we listened to what Doctors, Midwives and what everyone else said and none of it mattered.
Thomas is our youngest child, he has an elder sister called Alana. Both straight forward and relativity uncomplicated pregnancies. Both born naturally and healthy, I guess you could say. Thomas wasn’t right from when we arrived home, call it gut instinct.
At three days old Thomas was back in the hospital fighting for his life after being diagnosed as having Group B Strep, it’s a bacteria that usually is quite harmless lives in the gut or vagina however on birth it was transferred to Thomas. He went on to develop early-onset Strep B meningitis and spent three weeks in the hospital. Looking back, three weeks was nothing really, but at the time I was 40 miles from home, it was hard for visitors due to the distance and Thomas was extremely ill.
What shocked me was that I had no awareness of Group Strep B or anything related, there had been no leaflet in my maternity pack, no posters on the wall. It never hit my radar, until the Doctor uttered the words I will always remember. ‘Your son, has meningitis…have you ever heard of the Strep B infection?’ That sentence changed our lives. Ironically, I sat in the Doctors waiting room three months after his birth opposite a Group Strep B poster!
Thomas was a little fighter and the photo above was taken last year celebrating his eighth birthday! A day that has now become a big deal in our house as it reminds us of how far we’ve come. I don’t want to dwell too much longer on the past. I can be honest and say that Thomas has a multitude of problems ranging from epilepsy, cerebral palsy, learning difficulties, speech and language delay and social disorders but he’s Thomas and a daily challenge but he’s our miracle.
I will talk more about Thomas, epilepsy, cerebral palsy and other related things over the next few months. If you have any questions, please feel free to contact me. If any of you have been affected by any of this, please share any thoughts and feelings. I do have a facebook group ‘Group B Strep Awareness’.
Thanks for reading…
*All opinions are my own, I have not been sponsored, paid or gifted any items in respect of my views and opinions. I also apologise if you found any of the images upsetting*.